Kyrie is still missing nursery because of medical precautions, but we are continuing her lessons at home! This week we talked about taking the sacrament, which was extra tricksy since she only gets hers through her gtube. But we continue to give it to her that way – well, now she pretty much gives it to herself – because it matters to her, and that way she can still participate.
Maybe that’s why we continue doing her nursery time at home, too, because it matters to her, and it’s a way she can still participate.
That’s the kind of thing we learn about from palliative care.
And I am so grateful for every one of these moments.