Miracle Delights

This morning the children got doughnuts before school, mostly because they were ready on time and we had a coupon for free doughnuts.  Also, because I am a pushover.

The children in school got their school breakfast, too, so I hope they could still function in class!

It made the “home-children” a little crazy!

But we had another food surprise, too!

It was another miracle for us, at least in our little world. 

 We have been paying for Kyrie’s feeding tube formula for two and a half years at $200 a week. 

 It has been so hard, and one of the examples of medical hardship that people don’t even realize. 

(Yes, we know about TEFRA.  No, we don’t qualify.  Crazy, right?)

But today the doorbell rang, and it was a box of her food with a letter from Medicaid that we won our appeal!  They are going to cover it for her from now on!  This is a huge help – like a mortgage payment every month – and we are so grateful! 

I totally cried! 

Many thanks to those who helped us keep her fed thus far! 

We will not forget such kindness. 

And a billion trillion gazabillion thanks not only to our pediatrician, but to all those who work in that office documenting and faxing an inordinate amount of paperwork to make this happen.

The other miracle to this was that the doorbell didn’t wake Kyrie from her nap.

Which is good, since I didn’t have any extra doughnuts!

It was disappointing only in that we expect our copy of Kyrie’s new book any day now, and so we jump anytime the doorbell rings.

But Mary and Alex kept working, and we plugged through the rest of our day.

Nathan worked on a new musical all morning, so I surprised him with some homemade pizza (since he and I didn’t eat doughnuts, of course).

We were glad to have a morning at home before another busy week.  Tomorrow it’s attorneys again.  Wednesday is IEP’s for Alex and Kirk (still no update on Mary), and Thursday is therapy morning for everyone.

We did get our new video edited, so that was super fun, and a friend fixed our van!  This is a relief, and means at least our van is good to go for Cincinnati.  Everything counts as we prepare, and we are grateful things are falling into place.

And by that, I mostly mean our courage.

And a little hope for a girl sleeping with oxygen in the other room.

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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