This morning the children got doughnuts before school, mostly because they were ready on time and we had a coupon for free doughnuts. Also, because I am a pushover.
It made the “home-children” a little crazy!
It was another miracle for us, at least in our little world.
We have been paying for Kyrie’s feeding tube formula for two and a half years at $200 a week.
It has been so hard, and one of the examples of medical hardship that people don’t even realize.
(Yes, we know about TEFRA. No, we don’t qualify. Crazy, right?)
But today the doorbell rang, and it was a box of her food with a letter from Medicaid that we won our appeal! They are going to cover it for her from now on! This is a huge help – like a mortgage payment every month – and we are so grateful!
Many thanks to those who helped us keep her fed thus far!
We will not forget such kindness.
And a billion trillion gazabillion thanks not only to our pediatrician, but to all those who work in that office documenting and faxing an inordinate amount of paperwork to make this happen.
Which is good, since I didn’t have any extra doughnuts!
It was disappointing only in that we expect our copy of Kyrie’s new book any day now, and so we jump anytime the doorbell rings.
But Mary and Alex kept working, and we plugged through the rest of our day.
We were glad to have a morning at home before another busy week. Tomorrow it’s attorneys again. Wednesday is IEP’s for Alex and Kirk (still no update on Mary), and Thursday is therapy morning for everyone.
We did get our new video edited, so that was super fun, and a friend fixed our van! This is a relief, and means at least our van is good to go for Cincinnati. Everything counts as we prepare, and we are grateful things are falling into place.
And by that, I mostly mean our courage.
And a little hope for a girl sleeping with oxygen in the other room.