Almosta Monkey

Anber could reach monkey bars for the first time, and was brave enough to try!  She did this about ten times before going back to her favorite slide!


That’s my brave girl, who has come so far from being too timid to try anything.  Know what made her realize she was full of courage?  She jumped into the pool before anyone else.  The others take awhile to warm up, but Anber remembered she already knew how to jump and so she just did.  Then she did twists, and criss-crosses, and canonballs.  She showed up her brothers!  Now that we are back home, she has put on her brave pants at the playground, too!  I love it so much!

We took an extra day to come home, pacing our drive for Kyrie.  She was really struggling, and then randomly ate a huge breakfast yesterday after not much for three weeks and almost nothing for two.  I was so relieved!  She didn’t eat anything else for the rest of the day, so I had to tube feed her some liquids and some formula for calories, but we managed to get home by the end of the day.

Today, though, she woke happy and excited and asking about school, so we decided to let her go.

She had a great day!  She ate all her meals and snacks, drank from her cup, and played with her little friends!  She is signing and talking and having so much fun!  Her sats stayed perfect, and her color stayed gorgeous, and she just really had a perfect day!  I am so grateful.

We take good days when they come, with this little one.

Our family has chosen a chaplain as we cope and struggle with the ups and downs of “chronic and complex” and all the challenges of having such beautiful days interrupted by the today-she-might-die days of palliative care.

But today, for just today, we had a perfect day, and I will take it.


We all had fun today after school!


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About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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