Anber could reach monkey bars for the first time, and was brave enough to try! She did this about ten times before going back to her favorite slide!
That’s my brave girl, who has come so far from being too timid to try anything. Know what made her realize she was full of courage? She jumped into the pool before anyone else. The others take awhile to warm up, but Anber remembered she already knew how to jump and so she just did. Then she did twists, and criss-crosses, and canonballs. She showed up her brothers! Now that we are back home, she has put on her brave pants at the playground, too! I love it so much!
We took an extra day to come home, pacing our drive for Kyrie. She was really struggling, and then randomly ate a huge breakfast yesterday after not much for three weeks and almost nothing for two. I was so relieved! She didn’t eat anything else for the rest of the day, so I had to tube feed her some liquids and some formula for calories, but we managed to get home by the end of the day.
Today, though, she woke happy and excited and asking about school, so we decided to let her go.
She had a great day! She ate all her meals and snacks, drank from her cup, and played with her little friends! She is signing and talking and having so much fun! Her sats stayed perfect, and her color stayed gorgeous, and she just really had a perfect day! I am so grateful.
We take good days when they come, with this little one.
Our family has chosen a chaplain as we cope and struggle with the ups and downs of “chronic and complex” and all the challenges of having such beautiful days interrupted by the today-she-might-die days of palliative care.
But today, for just today, we had a perfect day, and I will take it.
We all had fun today after school!