We have made it through the night with one sick little girl still breathing.
But she is a girl who opened her eyes this morning, a girl who hasn’t slipped away when she very nearly did.
She is a girl with a strong spirit, with an intelligent mind and sharp curiosity to learn, who has the right to some control and choice in her life in any way we can find to empower her.
So look at what she can do now!
She “helps” with her ng tube feeds for the first time!
We are still alternating formula and pedialyte every 15 minutes.
And we gave her 1/2 a ml in her mouth each time because she can absorb that without choking and it gives some comfort to her mouth dried by oxygen and not eating.
We are not in the safe zone yet, and this doesn’t change all she is facing, but it counts as a miracle and it will give her strength.
We are counting our blessings, and this is one of many!