We have made it through the night with one sick little girl still breathing.

But she is a girl who opened her eyes this morning, a girl who hasn’t slipped away when she very nearly did.

She is a girl with a strong spirit, with an intelligent mind and sharp curiosity to learn, who has the right to some control and choice in her life in any way we can find to empower her.

So look at what she can do now!

She “helps” with her ng tube feeds for the first time!

We are still alternating formula and pedialyte every 15 minutes. 

And we gave her 1/2 a ml in her mouth each time because she can absorb that without choking and it gives some comfort to her mouth dried by oxygen and not eating.

We are not in the safe zone yet, and this doesn’t change all she is facing, but it counts as a miracle and it will give her strength.  

We are counting our blessings, and this is one of many!

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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