Kyrie Struggles

Just yesterday the little punk was playing Ring-Around-the-Rosie instead of taking a nap. 

Early this morning her alarms went off that she had stopped breathing. This is not unusual for her, but her not responding to repositioning or rescue breathing was worse than usual. 

Her heart rate was too low, as was her oxygen even when she was on oxygen.

She has had no diapers today, no food, and choked on what formula she tried to sip. We are back on ng tube and oxygen, of course, with some IV fluids coming if she can’t get some down, and ENT in the morning. 

She had four other episodes today, and she is not singing or playing or talking and cannot even sit up. She only wants to be held, and doesn’t even want books or dolls. 

We have made her as comfortable as we can for the night, but I am anxious for the night after the day we had. 

Many thanks for prayers continuing.

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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