Feeding Tube

Kyrie has not eaten in three or four  days. She’s not moving or playing, and only cries and sleeps.  It’s very scary and very sad.

Our pediatrician is out of town, Cincinnati hasn’t emailed back, and the pulm and ENT in Tulsa haven’t called back.  So I contacted our nurse practioner, who knows Kyrie so well, and talked to her.

She sent us to the ER for some fluids for this little girl.

She got a bag of fluids, and also an ng feeding tube.

They were anxious about putting it in, so I told them I would do it myself if they would do an X-ray to confirm placement. 

I nailed it.

I’m really glad Cinci trained me on that last year, and today it saved her life.

They just need to be sure she is getting fluids and enough calories.

She still can eat real table food if she wants.

The doctor there told me she needed a trach, because she is using all her calories to breathe.

I said that we knew that, and he was welcome to give her one.

He said he didn’t think he could do it, but we should definitely have it done.

I will, I said, when we drive up to the trach drive through.

I didn’t really say that. But it makes me crazy because everyone keeps telling me that, but no one doing it. It’s not like a special bandaid I can buy on Amazon.  I really don’t know how to get it done or what I am supposed to say when doctors tell me she needs it so we should get it done.

We are on it, is what I say, because I don’t know what else to say.

Both the doctor and the nurse practioner said she could have died, and that we did the right thing, and the nurse practioner is trying so hard to connect our Utah ENT to local people to get something done.

We will see.

In the meantime, this girl is about worn out by trying to stay alive, and sometimes it scares me that she’s starting to give up.  We are both weary, I know, but our story isn’t finished yet.

Posted in Health, Life permalink

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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