This girl looks pretty sweet:
But she is one sick little girl.
She had three very bad desats today, and at one point became completely unresponsive, later a full code once we got to the ER.
She scared us bad today.
Once again, though, she pulled through.
Her heart is working too hard to breathe, she doesn’t have enough airway to get breath, and trying so hard for so long is wearing her out, they say.
She has been admitted to the hospital, and the doctors tonight want her trached and given a gtube. They wanted to do it tonight, but she isn’t stable enough for surgery. The consult teams of the different specialities are going to talk in the morning about what to do next, if she can pull through the night. On top of all this, she has pneumonia and a too high fever, just miserable and made crankier by the steroids and other medicine they gave her. The nurses adore her, though, and she still tries hard to charm them.
In fact, she even charmed them into giving her markers! Who gives a one year old (with a fresh palate repair) markers? I had to convert them fast to make them something else!
This kept her busy, though, long enough for Nathan’s parents to get to the other four kids at home (Mary away at school) and for him to bring us the baby’s things.
Now it is one am, and finally she is settled and sleeping. She snores the way only an obstructed baby can snore. It’s bad enough the doctors wrote an order to let her sleep on her tummy.
I don’t know what will happen tomorrow. We never know with this girl. She might be fine. She might have surgery. We might get sent to Cincinnati. We have no idea. We only know we once again need your prayers for a little girl who is trying really hard to breathe.