Breathe, Baby!

This girl looks pretty sweet:

 

But she is one sick little girl.

  

She had three very bad desats today, and at one point became completely unresponsive, later a full code once we got to the ER.

  

She scared us bad today.

Once again, though, she pulled through.

  

Her heart is working too hard to breathe, she doesn’t have enough airway to get breath, and trying so hard for so long is wearing her out, they say.

  

She has been admitted to the hospital, and the doctors tonight want her trached and given a gtube.  They wanted to do it tonight, but she isn’t stable enough for surgery. The consult teams of the different specialities are going to talk in the morning about what to do next, if she can pull through the night. On top of all this, she has pneumonia and a too high fever, just miserable and made crankier by the steroids and other medicine they gave her. The nurses adore her, though, and she still tries hard to charm them.

  

In fact, she even charmed them into giving her markers! Who gives a one year old (with a fresh palate repair) markers? I had to convert them fast to make them something else!

   
   

This kept her busy, though, long  enough for Nathan’s parents to get to the other four kids at home (Mary away at school) and for him to bring us the baby’s things.

Now it is one am, and finally she is settled and sleeping.  She snores the way only an obstructed baby can snore.  It’s bad enough the doctors wrote an order to let her sleep on her tummy.

  

I don’t know what will happen tomorrow.  We never know with this girl.  She might be fine.  She might have surgery. We might get sent to Cincinnati.  We have no idea.  We only know we once again need your prayers for a little girl who is trying really hard to breathe.

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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