Sticker Face

Well, we had another trial run of weaning Kyrie off oxygen.

She stopped walking, got pnuemonia, and dropped weight.

So she is back on oxygen, again, still, and I wish they would leave her alone.

And now she pulls her oxygen off, after six months of leaving it alone, so we are back to stickers to hold it on, and more tape when she pulls at that.

With her eye patch to help her palsy affected side, she is a fine mess and now we will have skin battles to fight as well.

She is a sick little girl who doesn’t feel so well or very happy, and your prayers are appreciated.


Posted in Health, Life permalink

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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