Kyrie is really upset that she is back on oxygen all the time.
I can tell she is frustrated, and I want her to know we know she is trying.
She has so many feelings and thoughts and so few words to express them.
I wanted to find a way for her to express them, and normalize, and know we are cheering her on even though we cannot imagine what she has endured.
So I had an idea.
She has one big cabbage patch doll given to us by a friend with PRS who has endured past high school, and a little cabbage patch doll given us by her caseworker at Christmas.
Cabbage patch dolls have little round faces like PRS babies, with recessed chins just like them.
That’s what makes it special.
I took the smaller of them, and two oxygen stickers, and an old cannula from when she was still only six pounds.
I glued it over the ears, and tightened it around the back of her neck the way Kyrie wears hers (because she doesn’t have enough of a chin to wear it in the front). Then I looped the loop over the baby doll arms in back, and stuck the other end through it all again – like tying a tie – so that when I trim the end, there is a little cord left hanging like Kyrie’s and enough for her to hold on to without pulling all of it off.
I hope she likes it!
Maybe it will help, even just a tiny bit.