Oxygen Baby

Kyrie is really upset that she is back on oxygen all the time.

I can tell she is frustrated, and I want her to know we know she is trying.

She has so many feelings and thoughts and so few words to express them.

I wanted to find a way for her to express them, and normalize, and know we are cheering her on even though we cannot imagine what she has endured.

So I had an idea.

She has one big cabbage patch doll given to us by a friend with PRS who has endured past high school, and a little cabbage patch doll given us by her caseworker at Christmas.

Cabbage patch dolls have little round faces like PRS babies, with recessed chins just like them.

That’s what makes it special.

I took the smaller of them, and two oxygen stickers, and an old cannula from when she was still only six pounds.

I put the stickers on the doll’s face:

I clipped the cannula to trim off the nose pieces since the doll doesn’t actually have nostrils for them to fit inside:

Then I glued a tiny line across the doll’s nose:

I stuck the cannula to her, and put it in the stickers:

I glued it over the ears, and tightened it around the back of her neck the way Kyrie wears hers (because she doesn’t have enough of a chin to wear it in the front).  Then I looped the loop over the baby doll arms in back, and stuck the other end through it all again – like tying a tie – so that when I trim the end, there is a little cord left hanging like Kyrie’s and enough for her to hold on to without pulling all of it off.

I hope it works!

I hope she likes it!

Maybe it will help, even just a tiny bit.

Posted in Parenting permalink

About Emily

I am a member of The Church of Jesus Christ of Latter-day Saints since 2009. I serve as a Chaplain, and work as a counselor. I got bilateral cochlear implants in 2010, but will always love sign language. I choose books over television, and organics over processed. Nothing is as close to flying as ballroom dancing - except maybe running, when in the solo mood. I would rather be outside than anywhere else, especially at the river riding my bike or kayaking. PhD in Marriage and Family Therapy, and currently doing a post-doc in Jewish Studies and an MDiv in Pastoral Counseling. The best thing about Emily World is that it's always an adventure, even if (not so) grammatically precise. The only thing better than writing is being married to a writer. Nathan Christensen and I were married in the Oklahoma City temple on 13 October 2012, and have since fostered more than eighty-five children. We have adopted the six who stayed, and are totally and completely and helplessly in love with our family. Nathan writes musical theater, including "Broadcast" (a musical history of the radio) and an adaption of Lois Lowry's "The Giver". He served his mission in South Korea, has taught song-writing in New York City public schools, and worked as a theater critic for a Tucson newspaper. This is not an official Web site of The Church of Jesus Christ of Latter-day Saints.

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