This little girl gave us a scare today.
I raced out with her to the car to drive her to the hospital, paging her pulmonologist and pediatrician. They said to keep her at home on her equipment and oxygen while they talk to cardiologist, but to bring her by ambulance if she desats again while on oxygen.
We will do X-rays and meet with the whole team in the morning to be sure her lungs aren’t starting pneumonia.
Their other theory is that she is “developing” which means an illness is about to present itself, like symptoms showing up before they know what she has. That’s what happened in Cincinnati, except she never developed anything.
A third theory is that her sleep study was too good because she was on oxygen during part of it, and so maybe it was worse than they thought and needs to be done over again.
I don’t know.
I only know that we made it one more day, barely, and I thank my Father for it.